Archive for life

The Swedish Invasion begins

Year Zero. Live. Ghost. The band that had won me over ever since I started drifting away from phish for a multitude of personal reasons. It would be the band to bring me through to a breakthrough that is bringing me to the next chapter of my life. It was June and they had announced they were coming to Portland and at a venue I knew I could access in my condition. It wouldn’t be easy though. I knew, that if I went in a wheelchair, I wouldn’t see the band. For some idiotic reason the venue stopped letting wheelchairs be up front, which relegates the ones coming for healthy medicine to be sitting on the side.  They (the venue staff) don’t know that for someone coming to a live concert for medicine, hearing it and not seeing it, while it’s great, it just isn’t the same thing. To just hear a concert, not see it; I don’t think people really understand the power of music.

I went to my first concert as a young child. The first concert I chose to go see was a boy band wearing matching shirts playing to an adoring crowd of prepubescent girls screaming their heads off. Months later I found myself at a heavy metal show that would be my foray into other genres of music. This would be my salvation.

I knew, after we got front row, reserved balcony seats that I would have to walk up a flight of stairs. The year previous, I had seen ghost at that same venue. It is one of the only hazy memories I have of 2015. I started walking up that flight of stairs and it was so hard and tiring that I was forced to sit between the two sets of stairs.

I now had a goal. I had four months to get myself standing, and walking enough to park a few blocks away and stand in line, amped of course, up those two flights of stairs that would take me to my coveted seat for the best medicine there is. Live music.

The first few weeks home weren’t easy. My memory was fucked. I would get a phone call and forget what was said. This was frustrating to my poor hubby. He had nursed me from almost the entire time we’ve been together. I was able to some what nurse him when he suffered a diagnosis of congestive heart failure and a subsequent cardiac arrest a few months later but I had not been able to sustain that for very long

Change

Im absolutely devastated by the news that my one boss is leaving and a new boss will be coming to take over in 2 weeks. Ive been working for J for almost 4 years. The new guy is just that, new, young, and will want things done differently. Im scared to death that I won’t get along with the new guy, Im scared to death that I won’t be good enough for him. I’m settled in my way of life and then suddenly the ball drops and something like this happens when i’m not ready for it. I suppose thats the way of life.  I cried when i heard the news. I didn’t know I would cry but the tears came out. Im going to miss j with all my heart. he was like a father to me. Always helping me out when I needed it. Even loaning us money when we had some hard times awhile back. You don’t find people like that all the time and I know the new guy won’t come close to being the way that J is. I just talked to my other boss, to let her know the change that is happening and she was very easy to talk to and she totally understands my loss.  That’s what it feels like, a loss. I know J’s just gonna be in a different building, but we’ve been working together for almost 4 years and thats a lot of time to be close. He talked to me about all sorts of things. Things like vietnam (he went twice), and his family and my family, and all sorts of personal talk. We are very close and this is going to be super hard. I have 2 weeks to get ready for this. I first need to get through today though, because I’m going to be on the verge of crying or just plain ole crying when i think about him leaving. It’s like losing a family member. Everyone is gonna say ‘ well hes just in the other building, now youll have to find reasons to go over there. I doubt I will. That place is NOT a comfortable place to visit. Too many personalities that don’t match. According to T, my other boss, the new guy is actually ok to work with and she says she knows I can do it. I know I can do it, I just don’t want to work for anyone else but J.